Subglottic tracheal stenosis

I haven’t posted anything about my second trachea surgery here, that I can remember.  I thought I should though, just for posterity and future reference.  For the moment it’s over and done with.

Last spring I started experiencing shortness of breath and wheezing, like I had back in 2015/16.  Instead of going through the whole process of x-rays, cat scans, asthma treatments, etc, I just went back to the ENT who fixed the problem in the first place!  Actually, I went to my PCP first to get the needed referrals.  My official PCP, a different doctor than I saw during the first round of all this, thought maybe the problem was caused by reflux.  I told him I didn’t have reflux, just the occasional heartburn.  He explained reflux and I said, “Ooohhh, yes, I guess I do have that!”  He gave me the ENT referral, but also had my try Prilosec for two weeks.  Guess what? No heartburn — at all!  That was a nice two weeks.  Unfortunately the damage was already done.

I went back to the ENT in November and he did the scope again, finding that yes, once again the scar tissue had built up in my subglottic area (just below the larynx) and was causing the wheezing and breathing problems.  He said we should definitely do another surgery.  I said, ok, but I don’t want a third, so how can we prevent this in the future?!  He agreed that reflux is a likely cause and prescribed a longer duration anti-reflux med.

So I had the surgery again on February 8th.  I intentionally scheduled it for the week before vacation so I could have two weeks off.  I remembered that last time one week didn’t feel like enough (though when I went back and reread the post I realized I also went to a Lego League competition the day before going back to work, NOT the best idea!)  This time I had a quiet week at home (with the except of Eve home sick one day, snow day another day, follow up appointments another day, etc)  Then we went to Franklin over vacation so I was able to relax there too.  That’s what I do best in Franklin!  :)

I went back to work this week and I’m feeling pretty great.  I can totally breath again!  I can walk up stairs without feeling like I’m dying.  I don’t sound like Darth Vader anymore.  I got nice flowers and a get well card from my coworkers, so I sent out a thank you email and gave them all a quick overview of what’s going on.  Since then so many have come to talk to me about it!  People have said they thought I had asthma, or bronchitis, or emphysema!  Geesh!  I’m glad I cleared that up with everyone.

I’m currently taking reflux meds, but also changing my diet to reduce the reflux in the hopes that I don’t have to be on the meds forever.  Now we wait and see if the whole thing comes back again after a few years.  Fingers crossed it does not!

If you’re curious, here’s a good description of what’s going on.

Here’s a super detailed version of it with some gross pictures, and that article led me to another that might explain what I really have.  I’m posting this mostly for my own reference, in case it comes back again in two years.

Anyway, that’s my story for this evening.  It’s great to be able to climb stairs and read a full picture book without having to stop and catch my breath!

Lunch?

Eve was packing her lunch yesterday, as she does every day, and I happened to see this: I was laughing so hard.  Obviously she wasn’t trying to take the whole box, she just set it there while getting a smaller container from the drawer, but it looked so funny I had to take a picture.

Later that same day I had lunch duty and I saw a girl with this for lunch:
Again, so funny! I showed her the picture of Eve’s lunch and asked if I could take a picture of her lunch too.  She said these were cookies that teachers had ordered, not really her lunch.  Still, funny!

Photos and nostalgia

We’ve have a big, empty wall in the mudroom that I’ve been thinking about how to fill. I’ve come across mirrors and signs in stores that I kind of like, but don’t love. It suddenly occurred to me last week that I want to put a large canvas photo there. The silly thing is that the idea was in my head while we were building the house, I could envision it and everything, but then forgot. D’uh! So now I’m on the hunt for the perfect photo. Something with depth, something with water (not sure why, but I feel drawn that way), and something with fun memories. I’ve been exploring the blog trying to find that “just right” photo. Here are some ideas. I’m not sure they’re perfect though.

both kids

I love them.

pond

The pond

to the beach

To the beach!

happy

Happy kids on the beach!

Or maybe this one. No water, but yellow and green. Might look nice in the mudroom.

flowers -p2

The problem with taking so many pictures is that it’s often hard for me to decide which ones are best.

The point of this post really is that I’ve been loving my blog lately. :) So glad I started and maintained it, even if not always regularly.  I love going back and seeing the old pictures.  The kids as babies and toddlers, of course, but also me and Alan, and everyone else!  I love reading the posts. Sometimes I was happy, other times I was grumpy, and sometimes, the good ones, I was deep and insightful.  I love it!

I was going to post a few more fun pictures that I’ve come across, but there are just so many adorable pictures I can’t decide.  I’d end up reposting all of them! Well, most of them.  They’re not all nostalgia repost worthy! :)  So you’ll have to go back and find your own adorable pictures to reminisce about.  Or not.  Whatever makes you happy.

District Band: Winter Music Festival

Lex’s school participates in a District Band event where selected students from 25 different schools come together for two days of musical fun.  This year Lex auditioned and was selected to attend.  He was thrilled!  The event was all day yesterday (he got to miss school!) and today, with a final performance for family and friends this afternoon.  It was a long drive (apparently a big district!) but we had fun and definitely enjoyed the music!

The high school band performed first and they were fantastic!!  I didn’t record much of their performance, but I loved these golden bongo drums and wanted to share.

Then the middle school band was up. Lex played the bass drum for the first song, the symbols in the second and third songs, and the castanets in the fourth song.

We had to stop and charge the car on the way home, so we invited Macy to join us for dinner. Macy was also in the band. She plays trombone! We had a loud and silly ride home, with a stop to recharge us (pizza) and the car (electricity) on the way.